CALL KATHLEEN DR. WOLFF CONVERSATION: ------------------- give him information on JHU vaccine: welts/bonus welts my health: last 3 months vaccine/hemoglobin; otherwise good digestion: more, less dense poop (3-4x/day, skewed towards AM; 1 immodium every 3 days) lifting weights, biking JHU says that in cases like mine, CA19-9 is almost foolproof; do you agree? --> WHAT other treatments, etc. can I do to help my odds? longest PC survivor(s)? less binary than I thought -- Bill Curren #17 - spot in liver; 10cm !!! what happens in cases like that, in terms of odds? --> if we can fight recurrance, should I be getting at least CA19-9 every month? ====>>>>>>bad scan scenarios I presume you'll see things before I feel things symptomatically how big/numerous are tumors in recurrance? how long, what quality of life what chemo do you try then? what are your numbers regarding Virginia Mason protocol here James Abbruzzese, professor and chairman of the gastrointestinal medical oncology department at the University of Texas M.D. Anderson Cancer Center in Houston - Monday's issue of the journal Cancer Cell by Mien-Chie Hung, professor and chair of molecular and cellular oncology at M.D. Anderson, - Bik gene Fall "invitation only" NCI meeting in Bethesda to braintorm out of the box (me go?) -- National Cancer Institute has scheduled an invitation-only meeting for this fall in Bethesda, Md., where top researchers from around the world will brainstorm. ============ Number #17 in the MD Anderson protocol. Surgery: August 9th, 2004. He said only 4 or 5 of the first 17 were still alive 63 years old, 2 kids Weight dropped 187-132 Almost 2 years clean, then "massive growth in liver" Biopsy negative, MRI, CA 19-9 soared up to 87, then back to 29. Several weeks later: GONE! December 2006, new growth: 10cm in liver Biopsy positive Did 4 treatments, each 2 weeks apart Gemzar + tarciva + cisplatin: dreadful March: trying to shrink it: got it down to 5cm Then burned it out : surgeon: ahar April: went back; had trouble getting doctor to read scan BIG burned spot in his liver 1 night in hospital, 1 night in rotary, then on his way Surgery no big deal