Dear Friends,
A friend of mine sent me this message.  The news of their friends is so
tragically sad.  Being a mother of 2 (almost 3) makes me ache for their
family even more!  I would feel so desperate in the quest to save my
children, as they are feeling.  Please read it and pass it on to your local
friends, co-workers or family who might be comfortable with their request.
Please include them in your prayers.
Thanks and God Bless!
Robyn

> Sent: Friday, October 26, 2001 9:51 AM
> Subject: HELP!!!
>
> > I have a huge huge request.
> > Trey and I have some dear friends of our family who
> > are in a desperate situation.  They have three little
> > boys and unfortunately two of the boys have a disease
> > called ALD.
> >
> > ALD is similiar to the adult form of ALS or Lou
> > Gerrhigs's disease.  ALD attacks the brain first and
> > then moves to the muscles and is fatal.  Recently, a
> > bone marrow procedure was developed to treat this
> > disease.
> >
> > The oldest child is 9 and his disease is too advanced
> > for him to be a candidate for the procedure.  The
> > second little boy is 7 and was just diagnosed with
> > ALD. Time is of the essence in order to possibly save
> > his life.
> >
> > Now, this is where we need your help!!!! The family
> > and all of their close friends have been tested and no
> > one is a donor match.
> >
> > If a donor is found the bone marrow is taken from the
> > hip under general anasthesa.  There may be some
> > soreness in the hip for a few weeks. Elliott is then
> > given high doses of chemotherapy to kill his immune
> > system and then given the bone marrow. He will then be
> > in issolation for four months.
> >
> > If you are willing to be tested, by a simple blood
> > test, to see if you could be a donor please go to the
> > address below on November 4th between 10:00 a.m. and
> > 5:00 p.m. (the test takes about 2 minutes)
> >
> > Congregation Beth Israel
> > 5600 North Braeswood (between Chimney Rock and
> > Hillcroft)
> >
> > Thank you for all of your help!!!! If you have any
> > questions, please e-mail me or call at 713/365-0472.
> >
> > Julie
> >
> > __________________________________________________
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> >
>
>